Cancer Patient Complains: My Facebook Feed Is Full of 'Alternative Care' Ads (nytimes.com) 207
The author of an opinion piece in the New York Times describes what happened after sharing their cancer diagnosis on Facebook:
Since then, my Facebook feed has featured ads for "alternative cancer care." The ads, which were new to my timeline, promote everything from cumin seeds to colloidal silver as cancer treatments. Some ads promise luxury clinics — or even "nontoxic cancer therapies" on a beach in Mexico.
There's a reason I'll never fall for these ads: I'm an advocate against pseudoscience. As a consultant for the watchdog group Bad Science Watch and the founder of the Campaign Against Phony Autism Cures, I've learned to recognize the hallmarks of pseudoscience marketing: unproven and sometimes dangerous treatments, promising simplistic solutions and support. Things like "bleach cures" that promise to treat everything from Covid-19 to autism.
When I saw the ads, I knew that Facebook had probably tagged me to receive them. Interestingly, I haven't seen any legitimate cancer care ads in my newsfeed, just pseudoscience. This may be because pseudoscience companies rely on social media in a way that other forms of health care don't. Pseudoscience companies leverage Facebook's social and supportive environment to connect their products with identities and to build communities around their products. They use influencers and patient testimonials. Some companies also recruit members through Facebook "support groups" to sell their products in pyramid schemes...
It was only last April that Facebook removed "pseudoscience" as a keyword from its categories for targeted advertising, and only after the tech publication The Markup reported that 78 million users were listed in Facebook's ad portal as having an "interest" in the category... Facebook pledged that it would add a warning label to Covid-19-related ads and would remove pseudoscience ads that were reported by its users. The problem, which even Facebook acknowledged, is that pseudoscience content can run for months before being flagged by readers. Facebook's main ad-screening system is automated. While we wait for its artificial intelligence system to catch up with the discernment abilities of human reviewers, a steady flow of pseudoscience advertising has already slipped through on a platform with billions of users.
Could it be that Facebook has gotten too big to adequately regulate its content?
The article also suggests one way that individuals can join a movement to pressure Facebook to change: "suspend, delete or even just spend less time on Facebook (and on Instagram, which is owned by Facebook)."
"My retreat from Facebook may mean fewer online connections, perhaps at a time when I need them the most. But I'd rather leave than see what another friend with cancer calls the 'slap in the face' ads."
There's a reason I'll never fall for these ads: I'm an advocate against pseudoscience. As a consultant for the watchdog group Bad Science Watch and the founder of the Campaign Against Phony Autism Cures, I've learned to recognize the hallmarks of pseudoscience marketing: unproven and sometimes dangerous treatments, promising simplistic solutions and support. Things like "bleach cures" that promise to treat everything from Covid-19 to autism.
When I saw the ads, I knew that Facebook had probably tagged me to receive them. Interestingly, I haven't seen any legitimate cancer care ads in my newsfeed, just pseudoscience. This may be because pseudoscience companies rely on social media in a way that other forms of health care don't. Pseudoscience companies leverage Facebook's social and supportive environment to connect their products with identities and to build communities around their products. They use influencers and patient testimonials. Some companies also recruit members through Facebook "support groups" to sell their products in pyramid schemes...
It was only last April that Facebook removed "pseudoscience" as a keyword from its categories for targeted advertising, and only after the tech publication The Markup reported that 78 million users were listed in Facebook's ad portal as having an "interest" in the category... Facebook pledged that it would add a warning label to Covid-19-related ads and would remove pseudoscience ads that were reported by its users. The problem, which even Facebook acknowledged, is that pseudoscience content can run for months before being flagged by readers. Facebook's main ad-screening system is automated. While we wait for its artificial intelligence system to catch up with the discernment abilities of human reviewers, a steady flow of pseudoscience advertising has already slipped through on a platform with billions of users.
Could it be that Facebook has gotten too big to adequately regulate its content?
The article also suggests one way that individuals can join a movement to pressure Facebook to change: "suspend, delete or even just spend less time on Facebook (and on Instagram, which is owned by Facebook)."
"My retreat from Facebook may mean fewer online connections, perhaps at a time when I need them the most. But I'd rather leave than see what another friend with cancer calls the 'slap in the face' ads."
Quit Facebook (Score:5, Insightful)
Facebook is very useful for finding people (Score:2)
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You seem to have missed the introvert bit. You notice they desperate clinginess in other isolated elderly extroverts, you feel for them, even when you don't want to be with them. As an introvert, being elderly means, ample opportunity to be left alone with your idly bored pleasant thoughts and in the internet age, the ability to idly express them.
As those Facebook ads are targeted by Facebook at the person Facebook seeks to psychologically manipulated, Facebook should be held fully legally liable for the co
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What about /.? I have been addicted to it since the late 90s. ;)
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Facebook is Cancer (Score:2)
Facebook is Cancer.
Get alternative communication.
Re:Quit Facebook (Score:4, Interesting)
My aunt has cancer. Can't go out or have friends over because the treatment has trashed her immune system. She talks to people she knew at school and found again through Facebook. Despite Facebook being generally awful I'm glad that she has it now.
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Same applies to any social media that allows any kind of a reinforcement "upvoting" "liking" etc mechanism.
Including slashdot.
So dear kettle. This is pot. You're black too. BLM.
Re:Quit Facebook (Score:4, Informative)
If you're only goal in life is to have sex, I feel sorry for you. If you absolutely require facebook for that, then I feel extra sorry for you, and you probably have a lot of terrible personality traits.
Re:Quit Facebook (Score:5, Funny)
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social engagement is important for establishing relationships, and social media is the main way that is done these days.
Saddest, stupidest thing I've read here all week.
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I go out into the real world and do stuff to meet people. You'd be surprised how much deeper your social interaction is in person instead of online.
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Interesting. That brings up a few questions:
Do you have a special reason why normal methods of meeting people do not work for you?
is there a specific reason why "getting laid" is a special problem or hard to obtain goal for you and not a normal part of every day life?
Re:Quit Facebook (Score:5, Funny)
Perhaps he's married?
Re:Quit Facebook (Score:5, Funny)
Yo, shitstain. Many people, including myself, use FB to keep up on family, friends and generally people that we like.
I log in, check updates, then log out. That's it.
I love the intro on this. He grabs the audience right away and says " I'm an over the top aggressive asshole"
Classy , i like it.
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Re: Quit Facebook (Score:2)
Your feed is based on what you follow. It's largely down to you.
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The article (TFA), Facebook, and common sense all say that it is not "down to you". Facebook decides. They may use any information for the decision, but there is no appeal.
Easy cure (Score:4, Insightful)
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but.. but.. That would mean I would have to first get on it..
No thanks.
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Whatsapp. Instagram. Oculus VR. A couple of others. All facebook.
Facebook Is Cancer (Score:2)
Facebook Is Cancer.
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Look at it another way. We have free speech in the US (I know, Facebook isn't limited to the US, but we do have a lot of slashdot readers who can't imagine a world outside that bubble). What we don't have is unlimited speech with no restrictions. What we have here is a clear case of speech that is harmful, and it makes sense to put strong legal regulations against it. But it is both very difficult to try to control this, legall, and difficult to convince the public that free speech is not unlimited.
We'v
Stop using Facebook, problem solved (Score:4, Insightful)
This is not a government provided, tax funded, required-to-use service. It's a private company which provides you free service. Don't like it, don't use it. Nobody is holding a gun to anyone's head to use FB, and especially to provide FB with private medical information like cancer diagnosis.
Full disclosure, I never had a FB account, nor even plan to get one. But I also don't judge people who choose to give their private information to FB and be exposed to FB's "society mind shaping". Welcome to free will (for now).
Re:Stop using Facebook, problem solved (Score:4, Insightful)
Facebook is designed in such a way that after using it for a while, it feels like there is a gun to your head keeping you there, in the form of FOMO.
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I literally can't relate. For the past few years or so I'd mostly go on just to like photos family members posted. But nowadays even that is too much work and I just go on to chat with friends/family. I think the last time I signed on was around July 4th. I really don't get the point of it anymore. It's too much work to keep up with it all.
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I see this is true of my wife and daughter, and just about all of their friends. It doesn't attract me, but then I'm an introvert anyway. But for them, the FOMO is strong. It's not just a corporation or an app, it's a platform, and all that that implies. Zuck understands that well and does his best to leverage it.
Re:Stop using Facebook, problem solved (Score:5, Insightful)
It's not just Zuckercluck pushing it either. I've been seeing commercials on TV lately from some phone company pushing data plans and smartphones (preloaded with FB of course)... Two old neighbors pass eachother in the park while walking their dogs. One of them is plugged into the Matrix and happy as all hell: "I send my kids 3 pictures of the dog every day." The other one reveals she's not plugged in, and a concerned look comes over the first one's face. Pity, mixed with a bit of surprise. "Oh." Then, "My kids don't even know I have a dog."
They're really pulling out all the stops. You'd better jack in if you want a relationship with your family! Do you hate your kids or something?
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Well, let's call it digital natural selection. Those who survive Facebook will be stronger for it, making human gene pool stronger.
Re: Stop using Facebook, problem solved (Score:2)
I missed that memo. What's FOMO?
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Indeed, I would never have a real FB account either as it is just stupid. But because of a few things I have had temporary random name accounts to register for things that ignorant people put up and such..
But I definitely agree on your point that following steps are kind of self evident.
1)Have a platform that is specially inviting to people who do not think for themselves.
2) Give personal info to and advertising company voluntarily through that platform.
3)Have that advertising company then categorize that
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Re:Stop using Facebook, problem solved (Score:5, Insightful)
The problem is that the information they give to Facebook includes non-users' personal information, such as their names, contact information, address, dates of birth, etc. The only way to protect my information from being used to connect the different people I know in my life is to not give them my personal information at all. That's not feasible unless I want to have zero friends. They blindly upload their address books.
And then let's talk about their trackers. Every fucking website has a Facebook tracker on it these days. Yes, there are ways of blocking these, but this whole "just don't use Facebook" attitude is simplistic. I can't go into my work computer and prevent those trackers from loading on work-related websites. It's maddening how deep their reach is. Not having an account is just the bare minimum of what one must do to avoid having them track you, and most of what they get comes from your idiot friends who don't care. I've tried patiently and calmly educating, explaining...it all falls on deaf ears because they are addicted. It's like trying to explain to a meth or heroin user why their addiction is bad. They know, but they can't stop themselves from enriching bowl-cut Zuck's pockets so he can buy another Hawaiian island with all the dirty money he gets.
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..and most of what they get comes from your idiot friends who don't care. I've tried patiently and calmly educating, explaining...it all falls on deaf ears ...
This is exactly why we have no hope of stopping COVID
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You cannot stop FB from collecting information about you, however if you don't have an account with them, you don't need to worry about FB showing you ads, right? If you go to FB voluntarily, what are you doing complaining about seeing their ads?
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> especially to provide FB with private medical information like cancer diagnosis.
Never used FB. But from I heard, you don't actively provide it with private medical information. It figures out such stuff from your FB messaging and by tracking browsing activity through Facebook share buttons everywhere.
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Facebook = National Enquirer (Score:3)
When desperation rules the roost (Score:4, Informative)
It's not that surprising. Desperate people have always been the most likely marks for pseudoscience.
There's not much need for legitimate medical facilities heralding treatments confirmed to work in respectable trials to advertise in such mediums... people doing good work in any vocation have the least need to advertise their wares, particularly in places of ill repute.
Re: When desperation rules the roost (Score:3)
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He could just update his Ad preferences and Interests
Fb would just change them back periodically.
So someone did belive them (Score:2)
Just my 2 cents
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Just my 2 cents ;)
Why do people post this? The whole of the internet is just someone's 2 cents.
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More than that. Back in the day, if you posted to Usenet, you might get a warning like, "Are you sure this is worth it? It will cost hundreds of dollars copying around the world."
The World Outside Facebook. (Score:2)
"My retreat from Facebook may mean fewer online connections, perhaps at a time when I need them the most..."
If only there was an alternate way to communicate with people via the internet that was platform-agnostic and not directly controlled by a single corporation...
Re:The World Outside Facebook. (Score:4, Interesting)
I have been conducting a little experiment by writing emails to people I have lost contact with. It doesn’t seem to be too effective with people that spend most of their social time on FB.
Oh well... maybe there was a reason I lost contact with them in the first place...
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I have been reverting to snail mail with postage stamps. Remember those? Its amazing, you actually find out who your *real* friends are, and your writing skills improve simultaneously.
But it's "big pharma" that only cares about money (Score:2)
Not the wholesome alternative miracle cures!
Go fuck off and play with something poisonous like your colloidal silver you snakeoil peddlers!
To be fair Big Phara sucks too (Score:2)
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And this has what exactly to do with snakeoil being sold by unscrupulous murderers?
Why allow ads ... (Score:2)
...into your FB feed in the first place? When I hit FB, I have the F.B. Purity plug-in blocking ads so I don't have to even see 'em. (It allows one to block a lot of other stuff as well.) I find it jarring to look over someone's shoulder while they're on FB and notice all the ads -- and other crap -- that's spewed into a person's feed. That said, I'm looking forward to the day when I nail a sign up on my FB page letting friends know where they can find me from that point on.
Ad-blocker + Privacy protector = problem solved (Score:2)
In your computer: just install uBloc origin (and the relvant language packs if you are not an anglophone) + Privacy badger + Tracking Token Stripper + Facebook container.
In your android phone: do exactly the same, and instead of using the facebgook app, go to https://touch.facebook.com/ [facebook.com] using your browser (the one with the four extensions installed).
Also, facebook has a Messenger Lite app, that way, you can still connect to people (for emotional support during these trying times) without those pesky Ads. Ke
Or... (Score:3)
Just use Ad Blockers.
I don't understand (Score:3)
In today's cellphone world where people are almost always a phone call away, how can dumping FB leave you unconnected? Yes you will not see your niece/nephew post what they had for breakfast, but you could talk to them. How did people do it with landlines? As a kid we had one landline phone, and somehow we did not become unhinged. People called in the evening and hoped you were home. Heck I grew up pre-answering machine so if no one was home, you had to try again later. Try calling and actually having a conversation.
Quitting isn't easy (Score:4, Interesting)
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No. It IS easy. Message everyone you want to keep in contact with and request how they would like you to contact them.
Then contact them that way. The ones that don't respond were never your friends anyway.
Saying it is difficult is bullshit. It isn't.
You get what you pay for. (Score:2)
Re: You get what you pay for. (Score:2)
life is hard (Score:3)
Hi Anne Borden. You get cancer and rightfully expect some sympathy, but all you get is scammers who want to feed off your desperation.
I'm in a similar situation, Anne. I'm old. I don't use FB or other antisocial media, but I'm with AARP and the AARP people want me to buy their insurance and many other products. Frequent AARP publications promote many businesses that feed off old people, many of whom are desperate just like you. Like commercial sites, the AARP site will spy on users heavily. They will ask you to participate in surveys which are really just more spyware. It's a huge scam!
But in the end, it is just advertising as it has existed for hundreds of years. It's rumored that King Arthur fell for a deceptive ad for condoms 'so sturdy they can last for months'. [Or did I just make that up?] Most humans have inherited a genetic trait that protects them from such advertising.
One difference is that I actually PAY AARP. And they promote themselves as being protectors of senior citizens. I don't believe that Facebook makes any claim to protect users from anything. I stick with AARP in hope that they may influence government not to mess with the old, disabled or those in need of Obamacare. I'm not sure why you stick with Facebook.
Perhaps you are lonely, afraid, bored or addicted to FB. When I feel that way, it's always because I'm sitting around feeling sorry for myself. As soon as I start moving and doing something useful, maybe something helpful to others, I feel better. The compulsion to turn to Facebook must be powerful, but that energy can be directed into more positive activity.
My experience was quite different (Score:4, Interesting)
I was diagnosed right after Christmas last year. By the time my scheduled radiation got started, we were all living in the strange twilight world of lockdown. But cancer doesn't wait for any virus, so they kept the onco center, which is fortunately a separate campus from the hospital, open for myself and a small group of other patients. My town is normally teeming with tourists in early spring, but every morning I would drive in through an empty town that now looked like one of AMC's zombie sets.
Unlike this author, I didn't tell anyone on social media about my condition. But I know what he means: right now I'm arguing with antivax cranks on Nextdoor.Right now is the time of all times not to be spreading that crap.
There is only one solution (Score:2)
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One word: (Score:2)
Adblocker
10-15 years ago (Score:2)
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Some porno publisher has been sending me monthly snail mail ads with color brochures for 25 years, tracking me across half a dozen moves. I have no idea why they are so persistant. My only solace is knowing they've easily lost hundreds of dollars doing it.
um (Score:2)
Could it be that Facebook has gotten too big to adequately regulate its content?
It's a gigantic social network that claims to let anybody post almost anything. It also accepts tons of advertising via automated tools.
What exactly were you expecting?
Well, that's a surprise (Score:3)
You're sharing your fucking medical problems with a social media platform whose sole purpose is to resell your personal information to advertisers... And then you're surprised to get ads?
Re:Well, that's a surprise (Score:4, Interesting)
No. He gets fraudulent ads.
the solution (Score:2)
Bad for your health (Score:2)
Sigh. (Score:5, Interesting)
Welcome to the US.
Because in civilised countries, not only is it illegal to promote any kind of claimed "cure" or treatment for cancer, even regulated medicine is not allowed to advertise to non-medical people.
It's a literal category of banned advertising, in both respected.
https://www.legislation.gov.uk... [legislation.gov.uk]
(1)No person shall take any part in the publication of any advertisementâ"
(a)containing an offer to treat any person for cancer, or to prescribe any remedy therefor, or to give any advice in connection with the treatment thereof;
Also:
https://www.gov.uk/guidance/ad... [www.gov.uk].
When you choose profit over science, this is what happens.
Shit in sewer shock (Score:2)
Why would you expect anything else?
Pushback on Facebook et al advertising... (Score:2)
Just continue to educate everyone you can that if a product or service is advertised online it IS a scam. Not May be a scam. Is.
You will be right the vast majority of the time.
Why the surprise? (Score:2)
You're the product, NOT the client.
"My facebook feed..." (Score:2)
Re:Government, help me! (Score:5, Insightful)
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Yes. And put dissenters in gulags. And steal anything not nailed down to give to their friends.
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We're talking about commies, not America and how they treated the natives.
Re: Government, help me! (Score:2)
March them out of Phenom Penh
I take it you're not from that hemisphere, but to rename it as a processor f***in guarantees your post is technical
Re:Government, help me! (Score:5, Informative)
One would think, that's the problem right there, but no...
Actually, no. The OP is mistaken. You don't need to announce your cancer to be bombarded with cancer-related pseudoscientific ads.
My mother had cancer, and the very act of searching for information on cancer through Google or WebMD was enough for me to get bombarded with such ads on social media.
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My mother had cancer, and the very act of searching for information on cancer through Google or WebMD was enough for me to get bombarded with such ads on social media.
I think it's really cool. Taylor your searches for heavy weaponry at Crazy Eddie's and get ads from Lockheed and Boeing, maybe a free ticket to the Paris Air Show and some cheap Chinese shit
Re:Government, help me! (Score:5, Interesting)
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Ads can get targeted in many different ways, any that can get mined can get used to target you. Email address, ip address, user agent etc... Your deaf person has been searching for deaf shit on the internet for sure.
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If you see mostly right wing nuts that's a feature of where you hang out on Fb. I see mostly liberals. Even the school bus conversion group I belong to changed its profile pic to BLM. You have choices to make, and it appears you made the ones that expose you to the religious reich.
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Make you own public square (Score:4, Interesting)
FFS, why does everyone expect Facebook (or any other social media user monetizer) to "moderate" in a way that suits them?
Just be smart and get off Facebook. It's an awful place. You have to look way, way up through the pollution to see the pond scum at the surface.
Even Slashdot (and/or Soylent) is better than Facebook. At least the users are mostly doing the moderation.
Bottom line, you want the most free speech opportunity and the least intrusive garbage from third parties, set up a website. It's not like it's difficult these days. Otherwise, I don't see why we should give a damn what Facebook does. You hang out in low class brothels, you're going to get STDs.
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No, extreme right wing stuff gets all over the place. Simultaneously there is being pushed the myth that they're being censored. I see lot of posts there with an innocuous picture of Jesus with the caption "Facebook wants to ban this image, please repost!", and somewhere else someone will reshare another "I know facebook will ban me for this, but I think..." crafted image. None of which has any objectionable content whatsoever, but it feeds into the narrative that there's a vast leftwing conspiracy seeking
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Visiting the cesspool that Facebook is, makes no sense to me.
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Cancer isn't something to be ashamed of. Talking to your family and friends about your cancer diagnosis is nothing to be ashamed of. A third party trying to profit from you wanting to communicate to your family and friends about a life changing illness is heinous and shameful.
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A third party wanting to profit from selling a working cure is angelic. A third party wanting to profit from selling snake oil is evil. A third party wanting to profit from selling snake oil that diverts you from real treatment is diabolical.
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Seriously? Who the fuck said anything about shame? ...
It's about how others are going to abuse it. The advertisement problem is just one of many. Some people will just read the message, click "Like" and forward it, without a thought in their mind. Then there are those who will give you shit for it, from condolences as if you've already died to people who tell you that you deserve it. And of course there are people like yourself who make it about shame when nobody even mentioned it.
You must be really innocen
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Re: Now why would you do this? (Score:2)
I feel sorry for the guy for having cancer (assuming this was his diagnose), but he should have gone with email and other, more personal methods of communication.
The victim blaming and Internet Autism is incredibly strong in this thread.
The complaint is that the ads being seen are for poisonous and potentially dangerous horse shit that is absolutely useless against cancer but dressed up to target the poster.
So what if they made a semi-public announcement about their affliction? That is their choice to make. The whole " he fucked up by posting online", "he fucked up by using facebook", "he fucked up because $reasons" doesn't help anyone.
The problem is the ads are des
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There are literally giant law firms in Washington whose job it is to carve up your snake oil advertising so you don't run afoul of fraud laws.
Next time you watch some supplement ad, be ready with the pause button and read the fine print, if you can. That's them, keeping their huckster clients out of jail.
"Promotes healthy this or that." -- legally meaningless
"Not intended to treat or cure any disease" -- if it did, it would be a drug requiring testing. Related: "Statements not evaluated by the FDA".
And o